Best of Both Worlds

Someone asked me today if I enjoyed being deaf, or would I rather just be able to hear like everyone else. I was also asked if I would go back and not get cochlear implants. I’ve never really expressed my opinion about this until I was asked this. This is my own opinion taken from my own experience so this may be a little long but bear with me.

Yes, I know I’m different than everyone else. I never mention to anyone how I have to work twice as hard in everything I do. It’s become second nature and it’s not so much that I enjoy being deaf but I couldn’t imagine not being deaf. It has taught me that its ok to be different.

I do have a cochlear implant that allows me to hear. For instance, I turn on my cochlear implants during the day and then can’t imagine sleeping with them at night. Even at 20 years old I still think it’s creepy hearing noises throughout the night so I sleep completely deaf and couldn’t imagine otherwise.

So I am able to live in a silent and hearing world by the snap of a hearing instrument called a cochlear implant.

I am the person that will tell literally everyone I meet that I am deaf. I tell them so they know that if I miss something thats said it’s for a reason. Yeah, I also say it because I’m extremely awkward and I need them to know that if I just nod my head and say “yeah” there’s a good chance I have no idea what you said, so I will own up that. But mainly I tell them because I always crack jokes about it and I’ve found people respect confidence over everything. I have come to realize that I am the only who can make anyone aware of my deafness.

Here’s a little background:

When I was born, I was a healthy baby but months went by and my parents sensed something was off. I was not reacting to their voices or to noises. At eleven months old, my parents went to a number of doctors who continued to say that I was fine, ultimately; the last doctor discovered that I was born severe to profoundly deaf in both ears. My parents decided to get me hearing aids and I had them until preschool, but those devices did not do anything for me. To this day, I still do not know how I survived with them.

Finally, my parent’s began to learn more about an upcoming hearing device called the cochlear implant. A cochlear implant is a device that is surgically implanted behind the ear that allows a deaf person to hear. At four years old, I became a candidate, one of the first people who the audiologist diagnosed as a borderline, to receive the cochlear implant, for my right ear and went through with the surgery.

Cochlear implant

The doctor’s opened the back of the ear and implant an internal cochlear implant device that connects to the outer device. So whenever someone speaks to me, the outer device connects to the internal one and sends signals to my brain within seconds. After receiving the surgery I went through years of intense oral speech therapy.

By doing this I have been fortunate enough to be mainstreamed in all aspects of life. From my education starting in elementary all the way to now, in college. I never once took any type of help; I wanted to be considered “normal.”

My grandmother used to tell me the story of one particular time we were outside playing and I had received the cochlear implant. I finally heard the sound of the wind and I was in awe so I asked her what that noise was. She always used to tell me that was one of the most amazing moments, that she was able to witness someone hear something for the first time. Growing up I was able to adjust to my surroundings while going to speech therapy three times a week for years. I could not be more thankful for my parents for all of this.

When I was thirteen I wanted “stereo hearing,” which means having the chance to hear from both ears. I was your typical teenage girl who got frustrated with her friends but mainly because I couldn’t keep up with the conversations. I decided to do something about it and received my cochlear implant surgery for my left ear. At last, I was able to hear from both ears, which in scientific terms is called “bilateral hearing.” I went ten years only hearing from one ear and the minute the left one turned on it was a whole new way of hearing.

Don’t get me wrong, when I was four years old it was an amazing experience to hear for the first time but I just don’t remember it clearly. When the implants get turned on for the first time, the sounds are not normal since the brain needs to get adjusted to hearing from that ear. As soon as my left one was turned on, everyone’s voices sounded like Disney animation cartoon voices. No exaggeration.

So the summer before my freshmen year of high school, I had to go through one of toughest times in my life by going a whole summer of just listening to voices like this to adjust to the “new ear,” which means not wearing the right cochlear implant that I had been so dependent on after ten years. It was not easy as I had to see the positive in it every day as I struggled to keep up with conversations and life that whole summer but going through all this has allowed me to finally hear from both ears.

I have learned “patience is a virtue.” I have to go to audiologist appointments every year to adjust the devices, the audiologists have to check my frequencies by having me sit in a sound booth and repeat countless words and sentences to see if my hearing has improved. Therefore, I have never looked at my hearing loss as an impairment, but rather an advantage.

Many people in the deaf community are against the cochlear implant, but I disagree. I have the choice to turn sounds from anyone or anything on or off at anytime which is, in my opinion, a blessing.

Existing in an oral world has taught me that I have the ability to show others that anyone can overcome obstacles. By taking advantage of my “disability” I can remove my cochlear implant in time to shut out the voices of my screaming parents telling me to clean my room. Basically having the choice of “selective hearing” as my parents call it.

Luckily, I have also been able to teach my friends and family patience; numerous times my best friend will finish saying a sentence, notice my reaction, proceed to laugh and say, “Did you hear anything I said?” and repeat it for me. I’ve learned to joke around with it and use my abilities to my advantage.

Because of speech therapy, I can lip read extremely well and even read people’s conversations from across the room; if I hadn’t gone through everything I have, I would never be able to do that.

So to answer that question no I would not want to hear like everyone else. Who wants to be like everyone else, yes I know a cliche. I wouldn’t have become the person I am today without being the way I am. I love shocking people with how far I’ve come and helping others go through the same things I went through. People under estimate how much someone who is deaf have to go through in their life, some of us are proud of being deaf and others are frustrated with it. Either way, it’s something that can make or break your life.

One of the most significant things I’ve learned is how important it is to give people the benefit of a doubt. If you see someone that is struggling give him or her a chance. The amount of times I’ve struggled and encountered rude people who have looked at me like I’m dumb is unreal. It aggravates me so much so of course when this happens I never miss a chance to tell them why I couldn’t hear.

No I don’t tell them them so they can feel sorry for me, it just gives me a great feeling when I see the look on their face and have them realize what they did. I’m not saying everyone is like this but I’ve had people tell me since I’ve said that to them that they’ve stopped judging so hard. I would never go back and not get cochlear implants, no it hasn’t been easy but I’ve been blessed to live and experience two different words.

All in all, I have learned that being deaf gives me a completely different worldview from other people and that only makes life more interesting.

Please share!

14 thoughts on “Best of Both Worlds

  1. You are an amazing young women!! I’m honored to have you in my life. Don’t ever change you are amazing!!!!!!
    ❤️❤️❤️
    Margie

    Liked by 1 person

  2. You make me so proud of you!! The way you have overcome all the difficult times is amazing. All our prayers have been answered, YOU ARE AN EXAMPLE OF STRENGHT AND FORTITUDE!! WE LOVE YOU VERY MUCH. BITA AND POPO.

    Liked by 1 person

  3. It’s amazing how unique God has designed each one of us, and how He continually blesses us by putting people in our lives to help us get closer to our full potential. You are blessed! Pay it forward!
    🙂

    Liked by 2 people

  4. Julia, it has been amazing to watch you grow up into the warm, loving, and beautiful young woman that you are. You have blessed all of us who know you with your strength, compassion, resilience, and passion to help others. Thank you for being you! Love you, Miri.

    Liked by 1 person

  5. Julia – I can’t thank you enough for writing this. I am the mother of a 6 year little girl who was implanted in her right ear this past June at UM (so there’s our Miami connection.) She also wears a hearing aid in her left ear.

    Everyday I wonder how she will adjust to this world of ours and pray for her ability to clearly communicate with her peers, especially.

    You’ve given me more hope at a time when I’m not seeing the progress we had so hoped for. And your reality of the hard work it takes on both yours and your parents part is something I don’t hear or read about as often as I wish.

    Best wishes for your continued success!
    Mary

    Liked by 1 person

  6. I understand your journey. I was born profoundly deaf, 1948. Speech therapy starting at age 3 and 4. Mainstreamed in to kindergarten. Hearing aid 1954, 1st grade. By 3rd grade got the BTE, the next month was wearing two BTE. Heard the wind with both ears. !!!!! Used the phone too. School was not easy. Teachers had no clue or training . 1984 ,another journey. Lost the use of my right hearing aid ear by 1987. I managed . Lost the use of left hearing aid ear, 1993!!!!! . Now I am really deaf. . Last minute appt with my good friend , an ear surgeon. Was blessed when he said I might be a candidate for a cochlear implant. I knew very little about them, I just knew that was a solution. My late Dad and I left to pick up prescriptions. Thoughts of surgery did not bother me. WOW, implant!!!!! Dad said ” this is what we have worked for , when something better comes along.” You bet, I was eager!!!!! I had /have good auditory memory!!!! Have always been in the hearing world. Still do not know ASL. I was my Dr’s 1st C I patient and insurance took a lot longer. 711 deaf days which included very loud rining like a cruise ship horn . Surgery 1995. !!! I was back. !!!! Female voices were gawky and robot. Was wearing the C I , 15 hours daily. The boost was talking with my late boy friend on the phone an hour every night. That was the bonus helping my ear and brain to re-learn. Going bilateral was still experimental. Was seeing and reading about people with two by 2003. I have Usher Syndrome ( diagnosed 1988, hearing loss, blind spots to tunnel to blindness ) I knew I needed more. Activated 2006. Happy days. Yes re-learning too. So worth it. They are my diamonds. I keep my hair really short, . Got some fake stick ’em diamonds. Got my bling!!! Good awareness. I am grateful every day.

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  7. Thank you for sharing your story! I’m a mother of a bilateral six year old boy and reading your blog made me realize that his struggles he’s facing today will lead him to the greatest moments of his life.

    Like

  8. You are the best daughter a father could ever ask for.
    I wish I was half as tuff as you
    Like the publix commercial when father tells his daughter on her birthday
    “We gave you life, but you have given us so much more”
    Love you big time. “Hotty Toddy’,fins up”

    Like

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